This means a lot to me, because as many of you know, I have Ehlers Danlos type 7c (aka Dermatosparaxis). Ehlers Danlos itself is incredibly rare, and my type exceedingly so. I have the EDNF to thank, though, for the contact I have with a mother of a ten year old boy who also has Dermatosparaxis.
So, a very worthy cause, in my opinion.